Jaxon had his 1st day of pre-school for the year on Wednesday. He was very excited to ride the bus and only got a little upset when they left. He was pulling at the seat belt when he got home trying to get out and come see Momma. We send a notebook in his bag back and forth each day telling how the day went and what how his therapies went. His teacher last year started this and we really like the idea. It's a great way to communicate any problems and successes. Even the therapist like it, I overheard this physical therapist telling the new teacher how we did it and it worked well. This year he has a new teacher. Mrs Ogden. She is going to try to teach him to call her Mrs O.
After he got home from school he was really tired but still wanted a snack and to watch a movie. I put him down for a nap and then left for work. His nurse called me when I was half way and described his behavior and I knew for sure he was having a seizure. I went over our routine with her just as a reminder what to do. You can imagine you are ready for a seizure and when it's happening your brain can just stop. So then I left her to take care of Jaxon. I turned around and headed back to Topeka. I called Jason and told him to get home. It's nice to have him working 15 min from home now for emergencies like this. I waited awhile and then called the nurse back to get an update. She said she had already called an ambulance because the meds weren't working.
When I got home they were loading him up in the ambulance and getting ready to leave. As we were heading to the hospital his breathing started to slow and he wasn't taking in enough to support his body so they started to use a bag to help him breath. It pushes breathes into his airway. We also turned on the sirens and began going what they call emergent. We needed hospital help quickly. They gave him more meds to try to stop the seizure. Basically he was so tired from the seizure and the medication he couldn't support himself breathing.
When we arrived at the hospital his little room had about 10 people in it working on him and then I saw the dreaded machine. So I asked if it was a ventilator and they said "Yes". So this seizure turned to worst ever. They intubated him. In the picture that's what all the hoses and tube coming out of his mouth are. This consists of putting a tube down his throat and using a machine to help him breath. Then they had to sedate him enough so he didn't gag and cough because of the tube. They finally got him settled down and did a CT of the brain. Everything showed as normal as it gets for Jaxon, so we moved up to Pediatric Intensive care unit for the night. After about 5 hours he came out of sedation and they were able to remove the tube. What a relief. All this time we had been unable to get a hold of his neurologist because he was out of town and doesn't return until Monday. We were discharged the next morning. One nurse was really surprised at how quickly we were out. But honestly there was nothing more they could do for him. Now we wait for the neurologist to get back to us and see what action we will take from here.
He is feeling better each day. He just needs a lot of rest.
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