Just wanted to let everyone know we are getting a 2nd opinion on Jaxon's cleft palate. He has a appointment with the KU med center cleft palate team on Jan 7th. Jason didn't like the surgeon we met with a Children's Mercy. I don't think he like us questioning his 1st opinion. And his attitude was terrible. He kept telling us Jaxon's has a swallowing problem. Well duh we know this. We know cleft surgery isn't going to be a miracle cure and all of the sudden Jaxon will eat. Nope it's just a missing piece of the puzzle. If they think therapy is the only answer then we are going to ask them to help our OT therapist. Jaxon's is a very rare case and there is not a lot of documentation for kids with clefts and complications of prematurity. Our OT therapist is wanting to introduce electrode therapy for swallowing I have read a little about it but need to do more research before we decide if this is right for us. Anyway just wanted to update everyone who has been wondering where this is going.
A funny side note. Jaxon is extremely scared of the vacuum. As soon as it comes on he just breaks down. Poor guy, and poor carpet.
Hope everyone has a wonderful Christmas.
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