We had a wonderful Christmas, so much to be thankful for. Hope everyone had a great holiday. It was really nice to be able to take Jaxon out to see everyone this year. I think we saw all the grandparents and great-grandparents this year. Jaxon received so many toys I think we need to add a room onto the house to put them all in!! He loves them all though, he just looks around like what to do 1st. It's so much fun to watch him and Jason play on the floor with his toys. You can almost see Jaxon's little mind just turning when Jason teaches him how to operate parts of the toys.
On our wonderful 70 degree day yesterday we took Jaxon for his 1st tractor ride around the farm. He had a good time. He just smiled as the wind blew his hair. He also watched Brian and Uncle Nathan take out the Zombies. You should have seen him watch that video game in awe, it was funny. He didnt' have a clue what was going on but the sound and movement was entertaining.
I'm working on this New Years Eve, and on my way in I stopped to buy a lottery ticket for the Mega Millions. My dad was telling me I better buy a ticket the jackpot is something like $247 million. Well anyway to make a long story short the lady wouldn't sell it to me because I looked to young and my ID was in the car. Mind you, you only have to be 18 to buy lottery in KS. As you all know it's cold out and I was in a little hurry so I didn't have to time go back out. I told her " I'm 30 but thanks for making my day anyway" :) Looking back on the year and the joys and tears we have gone through and to think I don't even look 18. Well I know better but it was a good laugh anyway. However I did just buy my ticket at another store and I'll let everyone know if I win!!
I wanted to share a pleasant surprise to me today. I met the wife and children of a man I work with today. They have a little boy who just turned 6 yesterday. He is the most polite and handsome little man. He was born with down-syndrome. You wouldn't know it other than the obvious signs. It was great to talk with her. She shared her story with Trenton. Much of the same things we go through just some in a little different light. She told the hours they put in with physical, occupational and speech therapy. I got to see the results of it and it really gave me inspiration with Jaxon. I know Jaxon is doing well but sometimes you just wonder if you are doing enough and if your efforts are going to pay off. She said her son didn't walk until he was
2 1/2 and now you wouldn't have a clue. He chases his sister around the office just like little brothers do. It was a nice addition to my day.
We have a busy week ahead, but in a good way. We are doing his last set of pictures on Thursday to finish up his 1st year pictures. We didn't quite get them done the way normal people do, but what's the fun in normal. I'm anticipating Jaxon's cleft appointment on Friday. I'm hoping we will get some real answers and maybe a plan of action.
Friday, December 31, 2010
Thursday, December 16, 2010
A Quick Update Before Christmas
Just wanted to let everyone know we are getting a 2nd opinion on Jaxon's cleft palate. He has a appointment with the KU med center cleft palate team on Jan 7th. Jason didn't like the surgeon we met with a Children's Mercy. I don't think he like us questioning his 1st opinion. And his attitude was terrible. He kept telling us Jaxon's has a swallowing problem. Well duh we know this. We know cleft surgery isn't going to be a miracle cure and all of the sudden Jaxon will eat. Nope it's just a missing piece of the puzzle. If they think therapy is the only answer then we are going to ask them to help our OT therapist. Jaxon's is a very rare case and there is not a lot of documentation for kids with clefts and complications of prematurity. Our OT therapist is wanting to introduce electrode therapy for swallowing I have read a little about it but need to do more research before we decide if this is right for us. Anyway just wanted to update everyone who has been wondering where this is going.
A funny side note. Jaxon is extremely scared of the vacuum. As soon as it comes on he just breaks down. Poor guy, and poor carpet.
Hope everyone has a wonderful Christmas.
A funny side note. Jaxon is extremely scared of the vacuum. As soon as it comes on he just breaks down. Poor guy, and poor carpet.
Hope everyone has a wonderful Christmas.
Saturday, December 11, 2010
Thanksgiving and a Little of Everything
We had a wonderful Thanksgiving week. On Tuesday night we made a surprise visit to see Grandma and Grandpa Melton. Jaxon had a good time showing off of course. We went to visit Dad and Michelle afterward and Nana let Jaxon take a cat nap and you'll never guess who was up till 12:00??
On thanksgiving day we went to Jason's grandma Kaff's house for lunch. It was perfect we stuffed our faces and then I had to leave for work. Jaxon had a great time cracking up at Dale's little dog. We got a video and I will try to share it on facebook when I figure out how to get it off my phone. Since my phone doesn't do video it makes it a little difficult. We then had a Saturday dinner and Dad's. Same thing eat and run for me. Jaxon stayed and entertained everyone.
We had our first visit with Santa. Jaxon was so interested in his beard and he just couldn't stop staring at him. We had a hard time getting him to look at the camera. It was funny at least he didn't cry. The pictures turned out really cute and I can't wait to get them back. I hope they come before Christmas. We have been waiting on our family pictures for 2 months and still haven't gotten them back so who knows. One of Jaxon's nurses has taken off doing photography and she does so really good work so I'm hoping to maybe use her.
We were asked if we were interested in being an Ambassador family for the March of Dimes for the Topeka area next year. If we are selected we will basically be the face of the MOD in the Topeka area for 2011. It means pictures, speeches and any other public events to promote the March of Dimes. The largest event in Topeka is March for Babies. I'm also considering being on the board for the walk. I just want to make sure I have enough time to do everything so we benefit the MOD. They do great things.
Jaxon's update: Both he and I got a terrible tummy bug. We both were sick for a couple days and then it was over. He began taking small amounts of water from a sippy cup after his tummy felt better since he was so dehydrated. This was a big improvement. He actually thinks its fun. He has gotten his 2nd round of synagis. Went about the same as the first. He was heartbroken. 2 down 3 to go. He is doing really well on physical skills. He has learned to turn around on his butt and sit up from a lying position. He thinks he's big stuff. He is starting to move forward toward the crawling position he's just not sure enough of himself yet. Eating is at a standstill currently. We are debating getting a 2nd opinion on his cleft from a cleft palate team at KU med. We will see his OT therapist on Monday at children's mercy for a normal monthly appointment and consult her about a 2nd opinion. I just want to make sure we are doing everything we can for his progress.
On thanksgiving day we went to Jason's grandma Kaff's house for lunch. It was perfect we stuffed our faces and then I had to leave for work. Jaxon had a great time cracking up at Dale's little dog. We got a video and I will try to share it on facebook when I figure out how to get it off my phone. Since my phone doesn't do video it makes it a little difficult. We then had a Saturday dinner and Dad's. Same thing eat and run for me. Jaxon stayed and entertained everyone.
We had our first visit with Santa. Jaxon was so interested in his beard and he just couldn't stop staring at him. We had a hard time getting him to look at the camera. It was funny at least he didn't cry. The pictures turned out really cute and I can't wait to get them back. I hope they come before Christmas. We have been waiting on our family pictures for 2 months and still haven't gotten them back so who knows. One of Jaxon's nurses has taken off doing photography and she does so really good work so I'm hoping to maybe use her.
We were asked if we were interested in being an Ambassador family for the March of Dimes for the Topeka area next year. If we are selected we will basically be the face of the MOD in the Topeka area for 2011. It means pictures, speeches and any other public events to promote the March of Dimes. The largest event in Topeka is March for Babies. I'm also considering being on the board for the walk. I just want to make sure I have enough time to do everything so we benefit the MOD. They do great things.
Jaxon's update: Both he and I got a terrible tummy bug. We both were sick for a couple days and then it was over. He began taking small amounts of water from a sippy cup after his tummy felt better since he was so dehydrated. This was a big improvement. He actually thinks its fun. He has gotten his 2nd round of synagis. Went about the same as the first. He was heartbroken. 2 down 3 to go. He is doing really well on physical skills. He has learned to turn around on his butt and sit up from a lying position. He thinks he's big stuff. He is starting to move forward toward the crawling position he's just not sure enough of himself yet. Eating is at a standstill currently. We are debating getting a 2nd opinion on his cleft from a cleft palate team at KU med. We will see his OT therapist on Monday at children's mercy for a normal monthly appointment and consult her about a 2nd opinion. I just want to make sure we are doing everything we can for his progress.
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