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Me and my favorite little boy |
So I will start with the story. If you know Jaxon he definitely has a mind of his own. When he gets something in his head that's how it's gonna be. He won't let you forget anything. Today as we are walking out of his fairly uneventful neurology appointment he begins telling me "go shopping." I told him "No we are going home." He proceeded with "Nooooo" "Go shopping" This went on all the way to the car. As I was loading him up he was still saying "Go shopping" by the way he hates shopping unless it's just running wild around the store. So I finally had an idea, I asked him "you wanna go shopping?" Of course "Yeah" is the response I got. Sooooo I figured that was my ticket to a Chipotle lunch to go. I got my burrito and loaded little man back in the car. As we were pulling away he begins saying "Bye Bye Shopping" I love this kid!!!!
Neurology update:
As the doctor and I talked I described the minor seizures Jaxon is still having with the new medication. His neurologist says they are called Complex Partial Seizures. So the doctor decided we would increase both medications one at a time and see where that gets us. Keppra is one of the medications Jaxon is on and it can have serious emotional side effects. Typically they call it Keppra rage. Kids get very mean, hitting and biting. We haven't seen any of this thank goodness but we are noticing what I would describe as insecurity. He hasn't needed his blanket on the bus all year and suddenly after starting the medication he needs it everyday. He also has entire meltdowns when I leave him anywhere or get out of his sight. I know that can sound like a normal kid thing, but Jaxon has already went through this stage and this time is a lot worse. He even gets upset when Jason walks in the door and I'm not with him. He will begin yelling MaMa and crying. So with the medication increase we will watch his emotional situation closely and if it gets worse we will be trying a new medication.
Here is a very good description of complex partial seizures. Most of this describes exactly how Jaxon acts during these. He has much more severe seizures but these are what his mild ones are like. He usually comes out of them on his own without medication and generally isn't to affected.
The pictures have nothing to do with the post just thought I would share:
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