Jaxon did not have surgery as scheduled on Tuesday. He woke up Monday morning with a fever and cough. I called and canceled his appointments for Monday and surgery for Tuesday. On Tuesday afternoon he went to the Dr and she gave him antibiotics for bronchitis. After 4 days, today was the 1st day he didn't have a fever. At best they will reschedule 2 weeks from when his symptoms are gone. There is always a reason for everything even if we don't know what it is. We are just putting our trust in the Lord and taking us on the path he leads us. With surgery in the future we can enjoy Christmas and look into the New Year.
Jaxon doesn't really understand Christmas yet but he loves the music. His care taker had Christmas carols playing today and he was right in front of the radio as soon as they started. This kid loves music of all kinds, Jazz is also something that really gets his attention. I can't wait to take him to see the Christmas lights next week. If you are in Topeka, TARC puts on a great show at Lake Shawnee and all proceeds go to TARC. They are the organization that has done so much for Jaxon. They come weekly for different therapies, provide activities and other related services. His caseworker has just helped us get funding for an ipad, so Jaxon can communicate until his speech becomes better.
His speech therapist at CAPPERS has really done all the work on communication but TARC is helping us get the device. It is an amazing thing to watch a child who can't speak, and you have no idea what he really knows show you. I had no idea he knew all his farm animals, or exactly who everyone in the family was. We took some pictures and he can point to them and in my voice it tells exactly what he has pushed. If he chooses the wrong thing, he will go back and choose what he really meant. It's just awesome to see. I will try to post a video soon. We have an ipad on loan from TARC through the holidays and we've put a lot of our own pics and such on it. We are really working on fine motor skills, getting him to use his pointer finger instead of his whole hand to make choices. Once he gets that down we can put more choices on a page and expand from there. The ipad has really made communication for so many much more affordable and convenient. A traditional communication device costs about $3000-$5000 and they are heavy and bulky. Jaxon can pick up the ipad but not the traditional device its huge (we tried it and found the pictures were to small).
This little man is changing so quickly. He has decided he likes bread, pepperonis, and town house crackers, and has tried a bite of Butterfinger. If I eat it, well I guess he has to try it.
Last little update, we got our family pictures taken for Christmas and Jaxon was a terror. However we got 1 family picture (and I mean 1 only) that was GREAT. It's our best family picture to date. Jaxon's individual pictures however weren't the best but at least he's not crying I guess. I would love to share our not so wonderful album with you but I can't figure out how on here so sorry :(
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