Buddy gets a G-tube

Jaxon put this bear together at Build - A - Bear for his 1st birthday.  His name is "Buddy"  and he truly has been Jaxon's pal.  He has been to surgery, all his hospital stays and now received his own G-tube.

Buddy



Buddy with his newly placed G-tube

 This has been another long week.  Jaxon woke up Monday having a bad seizure.  I know they are all bad but his breathing was really labored this time.  I tried giving him the meds to stop it and they only slowed it down but didn't stop it.  I called an ambulance and they stopped it after 30min.  He was running a fever of 102.9 possibly with some sort of infection.  This time he has been just plain worn out since.  Normally he rebounds after a day or so, but this time its been different.  We aren't sure if its because of the unknown infection or because the seizure was more severe this time.  His fever has gone away and he still tired but I think overall he is starting to come around.  He didn't sleep nearly as much today.  Fingers crossed he will be back to normal in a couple days.  We missed his neurosurgery and pulmonary appointments on Monday so I had to reschedule.  Talk about a pain.  Now instead of being on the same day we have 2 separate trips to make to KC.  His neurologist wants to keep his meds the same and try again.  It just really sucks we have to do the trial and error method here.  There are other medications but they have their ups and downs just like any medication.