Buddy gets a G-tube

Jaxon put this bear together at Build - A - Bear for his 1st birthday.  His name is "Buddy"  and he truly has been Jaxon's pal.  He has been to surgery, all his hospital stays and now received his own G-tube.

Buddy



Buddy with his newly placed G-tube

 This has been another long week.  Jaxon woke up Monday having a bad seizure.  I know they are all bad but his breathing was really labored this time.  I tried giving him the meds to stop it and they only slowed it down but didn't stop it.  I called an ambulance and they stopped it after 30min.  He was running a fever of 102.9 possibly with some sort of infection.  This time he has been just plain worn out since.  Normally he rebounds after a day or so, but this time its been different.  We aren't sure if its because of the unknown infection or because the seizure was more severe this time.  His fever has gone away and he still tired but I think overall he is starting to come around.  He didn't sleep nearly as much today.  Fingers crossed he will be back to normal in a couple days.  We missed his neurosurgery and pulmonary appointments on Monday so I had to reschedule.  Talk about a pain.  Now instead of being on the same day we have 2 separate trips to make to KC.  His neurologist wants to keep his meds the same and try again.  It just really sucks we have to do the trial and error method here.  There are other medications but they have their ups and downs just like any medication. 

Fall Harvest

We just finished fall harvest.  Jason and Nathan worked very hard on the new combine they bought last spring to get it ready for harvest.  The old combine we had was so worn down and it was very very difficult to get parts.  Many parts had to be custom made which takes time and some had to even be ordered from Germany (talk about costly just for shipping).  So we bought a John Deere.  Overall harvest wasn't terrible it just wasn't as good as past years.  We feel lucky though many places very close by had a lot less rain and their crops were a total loss.



Daddy's Corey Combine

  Jaxon had his 1st combine ride this year and he was loving it.  He just squealed and giggled.  He loves to watch toys or well anything that spins really.  So the reel on the header was the highlight.  The toy name for John Deere combine is "Corey"




Jaxon and his Corey Combine

 Medical Update:  We got medication at home to stop Jaxon's seizures.  I was so happy the Dr prescribed them for us.  I sleep better at night knowing I can just wake up and stop the seizure without and ambulance or the hospital trip.  Jaxon has been eating really well lately.  He tries just about anything that's soft and dissolves.  Then he will decide if he likes it or not.  He likes cheerios and trix cereals the best.  He is trying to say words that you say, which is wonderful.  He isn't real good at it yet but it shows his interest and progress.  We are still trying to get him an ipad.  Funding is hard to get so we are just gonna save for it and the program so he can use this for communication as he gets better verbally.